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http://hdl.handle.net/10637/10639The debate on rare diseases : a look at media response
| Title: | The debate on rare diseases : a look at media response |
| Authors : | Bañón Hernández, Antonio Miguel Solves Almela, Josep Antoni |
| Keywords: | Drugs - Criticism and objection.; Mass media.; Medicamentos - Crítica y objeción.; Duchenne, Distrofia muscular de - Farmacoterapia.; Duchenne Muscular Distrophy - Chemotherapy.; Enfermedades raras - Discursos políticos.; Rare diseases - Political speeches.; Medios de comunicación social. |
| Publisher: | University of Valencia. N. 6 (2016). |
| Citation: | Bañón Hernández, AM. & Solves Almela, JA. (2016). The debate on rare diseases : a look at media response. Mètode Science Studies Journal, n. 6, pp. 209-213. DOI: http://dx.doi.org/10.7203/metode.6.7188 |
| Abstract: | Rare diseases (RDs) are those that affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose and very few have a treatment. This article explores how the media report on the arguments and counter-arguments regarding the access to drugs for these pathologies, with critical discourse analysis for the case of Duchenne muscular dystrophy. We concluded that, in times of crisis, the debate polarises around economic arguments (the price of drugs), reinforced by doubts about their healing effectiveness. |
| Description: | Este artículo se encuentra disponible en la siguiente URL: https://ojs.uv.es/index.php/Metode/article/view/7188/7809 Este monográfico lleva por título "Science grid : the public understanding of science". |
| URI: | http://hdl.handle.net/10637/10639 |
| Rights : | http://creativecommons.org/licenses/by-nc-nd/4.0/deed.es |
| ISSN: | 2174-3487 2174-9221 (Electrónico) |
| Issue Date: | 15-Oct-2016 |
| Center : | Universidad Cardenal Herrera-CEU |
| Appears in Collections: | Dpto. Comunicación e Información Periodística |
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