The debate on rare diseases : a look at media response

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dc.centroUniversidad Cardenal Herrera-CEU
dc.contributor.authorBañón Hernández, Antonio Miguel
dc.contributor.authorSolves Almela, Jose Antonio
dc.contributor.otherUCH. Departamento de Comunicación e Información Periodística
dc.date2016
dc.date.accessioned2019-10-15T04:00:13Z
dc.date.available2019-10-15T04:00:13Z
dc.date.issued2016-10-15
dc.descriptionEste artículo se encuentra disponible en la siguiente URL: https://ojs.uv.es/index.php/Metode/article/view/7188/7809
dc.descriptionEste monográfico lleva por título "Science grid : the public understanding of science".
dc.description.abstractRare diseases (RDs) are those that affect fewer than five people in every 10,000. There are around 7,000 RDs, they are difficult to diagnose and very few have a treatment. This article explores how the media report on the arguments and counter-arguments regarding the access to drugs for these pathologies, with critical discourse analysis for the case of Duchenne muscular dystrophy. We concluded that, in times of crisis, the debate polarises around economic arguments (the price of drugs), reinforced by doubts about their healing effectiveness.
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dc.identifier.citationBañón Hernández, AM. & Solves Almela, JA. (2016). The debate on rare diseases : a look at media response. Mètode Science Studies Journal, n. 6, pp. 209-213. DOI: http://dx.doi.org/10.7203/metode.6.7188
dc.identifier.doihttp://dx.doi.org/10.7203/metode.6.7188
dc.identifier.issn2174-3487
dc.identifier.issn2174-9221 (Electrónico)
dc.identifier.urihttp://hdl.handle.net/10637/10639
dc.language.isoes
dc.language.isosp
dc.publisherUniversity of Valencia. N. 6 (2016).
dc.relation.ispartofMètode Science Studies Journal, n. 6 (2016).
dc.rightsopen access
dc.rights.cchttps://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subjectDrugs - Criticism and objection.
dc.subjectMass media.
dc.subjectMedicamentos - Crítica y objeción.
dc.subjectDuchenne, Distrofia muscular de - Farmacoterapia.
dc.subjectDuchenne Muscular Distrophy - Chemotherapy.
dc.subjectEnfermedades raras - Discursos políticos.
dc.subjectRare diseases - Political speeches.
dc.subjectMedios de comunicación social.
dc.titleThe debate on rare diseases : a look at media response
dc.typeArtículo
dspace.entity.typePublicationes
relation.isAuthorOfPublication0b4b624e-8693-4803-8e67-570c46514a27
relation.isAuthorOfPublication.latestForDiscovery0b4b624e-8693-4803-8e67-570c46514a27

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